|
The Child With a Spinal Cord Injury
by Randal R. Betz
(Editor), M. J. Mulcahey (Editor), American
Academy of Orthopaedic Surgeons, Shriners
Hospitals for Crippled Children Symposium
Aims to provide a
contemporary review of pediatric SCIs in order
to disseminate standards for optimal care of
affected children and adolescents, identify
areas of deficient knowledge, and encourage
research. Contains 68 contributions in sections
on etiology and prevention, management, medical
issues, orthopedic problems, upper extremity
management, rehabilitation, discharge and
transition, habilitation, research and
technological applications, and special
considerations. NOTE: Special order and
may require an additional charge as a "hard to
find" publication.
 Reflections
from a Different Journey : What Adults with
Disabilities Wish All Parents Knew
by Stanley Klein,
John Kemp
Reflections from a
Different Journey presents 40 stories by successful
adults who grew up with disabilities. They provide
insights into what it is like to persevere in the
face of community prejudices, and what it takes for
families and children with disabilities to work
together toward fulfillment. While there are many
books for parents on raising a child with a
disability, this is the first to help them learn
from people with disabilities, and to help children
face the unique challenges and rewards of growing up
with a disability. Reflections from a Different
Journey will also encourage and inspire older
children and adults with disabilities, other family
members, and education and health care professionals
who serve these families.
Spinal Cord Injuries in Children
by James E.
Wilberger
|
Download |
Pediatric Spinal Cord Injury
by Wise Young,
Ph.D., M.D., W. M. Keck Center for Collaborative
Neuroscience Rutgers University
Literature
review of the emergency care, acute
complications, chronic complications, and
functional recovery in children with spinal cord
injury. The abstracts of the cited papers are
included because they indicate clinical centers
that are experienced in pediatric spinal cord
injury care. This is a downloadable PDF file -
52 pages.
Physical Therapy for Children
by Suzanne Campbell,
Darl W. Vander Linden, Robert Palisano (Editors)
Text for physical
therapists on treating children. Emphasizes the
prevention of disability and the successful
transition to adulthood.
 When
Your Child Is Seriously Injured
by Marilyn Lash
This book is written
in an easy to read format and discusses the
emotional impact that injury, disability, or
loss can have on every member of a family.
Topics covered include preparing for hospital
visits, reaction to loss, helping siblings, and
coping.
 Lets
Talk About It: Extraordinary Friends
by Fred Rogers,
Jim Judkis
Written for the
child without special needs--the child with the
questions--this book opens up a difficult
subject to discussion. Mister Rogers challenges
the stereotypes that often plague children with
special needs and celebrates six children who
are extraordinary friends. Share this book with
all children--to spark communication, to attack
the stigma, to bridge the gap between children
with different abilities. Mister Rogers is the
perfect person to write a book like this, with
respect and the same gentleness that has
characterized his television show for decades.
"Rogers offers caring support and
validation...Books that offer such honest
reassurance are rare."
 Don't
Call Me Special: A First Look at Disability
by Pat Thomas,
Lesley Harker
This delightful
picture book explores questions and concerns
about physical disabilities in a simple and
reassuring way. Younger children can find out
about individual disabilities, special equipment
that is available to help the disabled, and how
people of all ages can deal with disabilities
and live happy and full lives. Titles in this
series for younger children explore emotional
issues that boys and girls encounter as part of
the growing-up process. Books are focused to
appeal to kids of preschool through early school
age. Written by psychotherapist and counselor
Pat Thomas, A First Look At books promote
positive interaction among children, parents,
and teachers, and encourage kids to ask
questions and confront social and emotional
questions that sometimes present problems. Books
feature appealing full-color illustrations on
every page plus a page of advice to parents and
teachers.
 Rolling
Along With Goldilocks and the Three Bears
by Cindy Meyers,
Carol Morgan
This picture book is
an adaptation of Goldilocks and the Three Bears,
the classic folktale retold with a special-needs
twist. Children will find all of the familiar
characters and scenes from the original story,
as well as a few surprises-Baby Bear uses a
wheelchair, goes to physical therapy while his
porridge cools, and ultimately makes friends
with Goldilocks. This new version is especially
appealing to children with physical
disabilities. It's also an entertaining tale for
all children, with or without special needs.
Taking Charge:
Teenagers Talk About Life & Physical
Disabilities
by Kay Harris
Kriegsman, Elinor L. Zaslow, Jennifer
D'Zmura-Rechsteiner
Discusses such
topics as independence, self-esteem,
relationships, and sexuality from the
perspective of teenagers with various physical
disabilities.
Financial Aid for the Disabled & Their Families,
2004-2006
by Gail Ann
Schlachter, R. David Weber
More than 900
scholarships, loans, grants, awards and
internships for people with disabilities or
their family members.
 Dewey
Doo-it Helps Owlie Fly Again
by Brahm Wenger
and Alan Green
The first children's
story inspired by Christopher Reeve and his
heroic battle to overcome paralysis. Wenger and
Green's clever, beautifully drawn picture book
teaches kids to be kind and compassionate. The
book, for children ages 3 to 7, includes a CD
with nine original songs performed by Bernadette
Peters and Mandy Patinkin, who narrates the CD
as well. The CD also features a special
performance by Dana Reeve. A portion of the
profits from Dewey Doo-it Helps Owlie Fly Again
is being donated to Christopher Reeve Paralysis
Foundation.
Grade 6 Up–This multifaceted vehicle for
eliciting some unique and many universal
emotions is designed specifically for siblings
of special-needs children. An adolescent
mainstay, the slam book is the chosen venue
for encouraging the venting of opinions,
hopes, fears, frustrations, and triumphs.
Comments by 81 young people display the
recurring theme of optimism, complicated by
hard work, dedication, resentment, and fierce
protection, all as by-products of love. Some
questions serve as icebreakers, such as "What
should we know about you?" and "What should we
know about your sib?" while thought-provoking
chapters include "What life lesson have you
learned from being a sib?" and "What are some
advantages–good parts–of having a sibling with
a disability?" Typical slam-book questions
such as "Has your sib ever embarrassed you?"
are interspersed with chapters like "Ever feel
invisible?" Answers from the large sample
group supply ample material so that each
reader is sure to relate to some of the
thoughtful or heartfelt responses. Highly
recommended for all middle, high school, and
public libraries.
 Kids
on Wheels
by Jean Dobbs
REVIEW: As a parent of a teenager who uses a
wheelchair, this book accomplishes all I
have been trying to create for my daughter.
The struggles with systems are clearly
defined and how to use resource to help
promote independence is a life saver. As a
Clinical Social Worker for over 20 years in
the disability field, I highly recommend
this book! It is now a must own for families
I work with, including foster parents, in my
CEU classes. It covers everything a parent
and professional need to know regarding
service systems. The Children's book is the
most respectful and positive presentation of
independence and potential I've come across.
Wheelchairs do mean freedom and mobility to
these writers and the individuals profiled!
Publications for Parents
WITH A
DISABILITY
Adaptive Baby Care Equipment: Guidelines,
Prototypes & Resources
This publication is
presented as a catalyst for problem-solving
regarding the development of adaptive baby care
equipment. This newest publication is designed
for parents, family members and professionals.
It includes: guidelines for problem-solving baby
care barriers; photographs and descriptions of
prototypes and resources for adaptive baby care
equipment; adaptive baby care techniques;
adaptive baby care equipment checklist;
commercial product safety commission guidelines;
and local and national resources.
Assistive Technology and Parenting: Continuation
of Adaptive Parenting Equipment Development
The report is based
on a multi-year research project to design,
develop and modify adaptive parenting equipment
and techniques for parents with physical
disabilities, as well as to test and refine
measures to assess the impact of adaptive
babycare equipment. "Equipment development and
its assessment can significantly impact the
individual parent, the profession of
occupational therapy, and the disability
community. Specifically, the equipment allows
the parent with a disability to assume a more
active parenting role which can enhance parental
confidence in parenting, the parent-child
relationship, and the family unit."
Babycare Assistive Technology for Parents with
Physical Disabilities: Relational, Systems &
Cultural Perspectives
This article
provides an overview of the baby care assistive
technology work at Through the Looking Glass
including a discussion of TLG's intervention
model, the impact of babycare equipment and
guidelines for equipment development. "For many
individuals with disabilities becoming a parent
can be thought of as the last frontier to
conquer with respect to accessibility and equal
rights. Babycare assistive technology allows
parents with physical disabilities more choices
in how they are involved in their baby's care,
through the elimination or decrease of barriers
in the environment."
 Parenting
and Disability: Disabled Parents' Experiences of
Raising Children
by Richard Olsen,
Harriet Clarke
 Disabled
Parents: Dispelling the Myths
by Michele Wates
|
